Feeling in my feet

7/25/13     4:05pm

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One awesome thing – feeling in my feet. I love that I can feel what’s under me. I feel the rocks and crevices, nothingness. The feeling tells my brain what to do, how to react, how to narrowly not fall off that cliff. I feel the coolness of grass under me, sense the firmness of the ground. It allows me to feel the floor and to move with it.

I love that I have feeling in my feet. I can sense pain. I can thwart danger. I can adjust my balance. It also tells me when I’m injured, when I’m tired, when I need to stop. 

Sometimes the feeling in my feet brings me pleasure. It allows a massage to relax me or a tub of hot water to soothe my stress. It warns me when I walk in the ocean if the water is too cold before I get hypothermia. It allows me to wriggle my toes in the sand with my mom, which makes me so happy.

Feeling my feet lets me know just where to place my tap to make sound and where to put a bandaid before I get a blister. It lets me enjoy a soft rug. It also lets me know when I step on a crack. And I can’t forget it lets me feel like I’m flying when I swing barefoot. I’m so thankful for the feeling in my feet. :)

© Michelle Routhieaux 2013

I love fruit

7/16/13    9:18pm

This morning I found myself staring at a list of questions for my biography in some book at my upcoming 10 year reunion. They all made me think. No spouse, no children. I’ve not become the me I wanted to be. I was particularly puzzled by the last prompt/question: Summary of accomplishments, dreams, travels since High School. It’s all been a blur. I had the invitation to regret, to be angry, to hate myself for what I’ve done. For the bio I came up with this. It surprised me but it’s true.

reunion biography

It didn’t seem complete. It’s not what I’m most proud of. So I continued it in my journal.

Summary of accomplishments, dreams, travels since High School:

  • I survived. I’m alive. I’m thriving.
  • Fought through mental illness
  • Didn’t give up
  • Found myself
  • Set her free
  • Learned to love her
  • Worked
  • Continued to follow my dreams & ideas
  • Learned to stand up for myself and my beliefs and eventually others’
  • Learned assertiveness & put it into practice
  • I’ve begun to tolerate being alone
  • Developed systems of change for myself and others
  • I refused to give up
  • I didn’t hurt myself
  • Separated myself from Mom
  • Learned to see her as a person
  • Got my license
  • Weathered DBSA through thick & thin
  • Joined a church I’m active in
  • Stood up for my beliefs, even when it got me fired
  • Learned to trust
  • Stopped running away
  • Owned/Developed pride in me
  • Learned how to tolerate anxiety
  • Continued to grow my resourcefulness
  • Had a relationship
  • Made real friends
  • Learned how to manage money
  • Didn’t forget
  • Didn’t let go of the dream
  • Took care of my body & teeth

I am pretty fucking awesome. Today Dr. N told me he’s proud of me, that I’ve accomplished something 2 years ago he didn’t think was possible – in terms of my wellness. He said he knew I had potential but didn’t expect this. It feels good that he’s proud of me and that he sees and appreciates the positive change I work so hard on every day.

Today I went to the casino and practiced the word Patient. I tried Compassion but it was too hard. I want to learn to be Patient. Now I’m off to dye a llama purple with blackberries, if I don’t eat them all first. ;) I love fruit. I have two biopsies coming up. Wish me luck.

© Michelle Routhieaux 2013

To New Beginnings

7-10-13     1:45pm

SAMSUNG

It’s official. I got my driver’s license. What a trip. Exhausting. I’m sitting now in the quiet of our mechanic’s waiting room, letting myself settle to the ticks of a clock. (Eyes closed…) In here it is cool. I can begin to relax.

I believe that I failed my driving test. God passed for me. Praise God I had a nice examiner. I almost hit a truck and had to try backing up 3 times. I was terrified, fighting to stay in the moment and ignore or combat the automatic negative thoughts and keep driving through the flashbacks.

When we pulled in I was shaking, fighting off tears. I didn’t believe her when she said I passed. All she said was, “Ok.” Odd. I held it together long enough to get through the line and to the bathroom to cry. These voices were screaming in my head, “You FAILED. AGAIN. You are NOTHING. I hate you! I hate you! I hate you! You’re right back where you started. DIE!” I pulled myself together enough to go out to Mom and then lost it again. I was crying so hard. All the stress from this month all came out in tears and sobs. She held me, pouring out reassurance about driving, which had nothing to do with my crying. It was nice just me and her. I finally calmed down after some Jamba Juice. Now I’m exhausted.

I didn’t expect that reaction. I couldn’t forsee, nor would I want to. It helped a lot that I went to the gym this morning and wore my new outfit. I had a pep talk with God, felt empowered. I met my goal today – to take the drive test. I faced one of my demons. I didn’t back down. I did it. I just happen to have gotten a license in the process.

(deep quiet breaths…)

To new beginnings.
To spiral journals.
To taking back ME.
Life. Me.
To new beginnings.
To starting over.
To cleaning house.
To owning my behavior.
To God.
To love.
To faith.
To life transparency.
To me.

To new beginnings.
Cheerio. ~

© Michelle Routhieaux 2013

All I Can Do

6-29-13     10:15pm

I feel sad. I just went walking. And praying.

(long pause)

My heart is heavy.

Janet is dead.
Libby is gone.
Joe didn’t show.
The sisters are fucking.
The ocean is cold.
My eyes are dry.
I might have cancer.
I’m alone…

Otherwise things are okay.
I want to go home.

Hear “All I Can Do (Thank You)”

The picnic was fun today.
Not sure if I’ll make it through the fair tomorrow.

© Michelle Routhieaux 2013

Being set free

6-14-13     10:36am

I woke up today feeling good. God is moving me quickly in a new direction. I’m not sure toward what but I am following as best I can, sometimes running to catch up. The past week has been bad, complete with temporary paralysis, aphasia and severe SI. But right now, in the moment, I feel good. I see color today. I am taking my mom to join my gym. I’m hoping we can spend some time working out together on our shared goal of getting healthier and losing weight. It will help to have something in common.

I’m moving forward in my room. I bought new wall art, a butterfly shower curtain I had intended for the bathroom but will work perfectly for the closet, and started condensing boxes in my closet and garage. I have a vision of a new white full bed and new mattress covered beautifully in the comforter and sheet set I had at USC. A regal safe place to lie my head. I want to build a home for myself. The hospital is the only place that has ever felt safe and I consider it my home. But it’s changing and I’m changing and I need my own safe place.

I stopped BrainPaint on Monday. My mom turned 65. My psychiatrist is going on vacation. We’re battling my insurance to get one of my meds. I have new neighbors. That is a trip. More about that later. Our house is infested with brown widow spiders. I’m not hungry anymore. I’m really spacey and I can’t remember anything. But in this moment I’m happy. I started doing GRAPES again last week. Today my E goal is to do 5 minutes on a machine at the gym. I don’t want to but I did get dressed. I am floating through my day. I feel the happy wearing into confused.

I’m scared to go to Dizzy’s. It doesn’t make any sense. I haven’t been going to jazz things in forever and I’m afraid C will be mad at me. I feel ashamed that I forgot, afraid I’ve been replaced. A friend pointed out a few weeks ago that since I got out of the hospital I haven’t gone back to my life. I guess not. Another jazz friend wanted to know where the fuck I’ve been and if I’m ok. A valid query. I didn’t tell him I forgot. Until he confronted me I had no idea I wasn’t going to jazz. I had no memory. I don’t remember what I was doing and when I do I don’t care or get scared. My slate has been wiped clean – without the use of ECT. ;) I do remember praying for a release from all of the pressure and stress and things I was tied into. I guess this is it. It does feel freeing to have no idea what’s going on. (stare…) I don’t know what day or month it is and I don’t care. I forget what time it is. I forget to take my meds. Not good. I forget to eat. I don’t know where I’m going. I miss deadlines and appointments. Usually this would upset me but I don’t really care. It takes a lot to get me agitated these days. It’s like BrainPaint erased that response. I like it. Except when I need to feel upset and I simply feel nothing. Either way, I’m moving forward.

I feel like I’m being moved by God’s current down the river that is my life. It is moving so fast that I can’t see the shore. I close my eyes and feel myself move. He carries me. He brings me through the rapids, over the falls and safely to shore. I just have to let go. I put my arms out. I am free. I hear this song a lot. I am a child of the one true king. :) I have nightmares that tell me different, that scare me. They’re not me. I’m being set free.

© Michelle Routhieaux 2013

Childless

6-4-13     9:53am

(quiet…)

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There is an issue going on at a group I attend. It is heated and ugly and hurtful. I had been handling the situation rather well, even people’s anger at me, until someone said to me yesterday he thinks the problem is most of the people there are “childless.” (pause ) Childless.

(quiet…)

I just stared at him. I said I don’t see that as a or the problem. He said for people with children it’s different… Right… It is the equivalent of saying his views matter more because he got someone pregnant. A grand justification. A rather easy excuse to cut many people off, I say, not deal with feelings. Hate is much easier than truth. I went on about my way but the word kept coming back. Childless.

Yes, I am childless. I have no biological children. I have not given birth. I’m not a foster mom. I don’t babysit. I don’t care often for others’ children. Oftentimes children annoy me. Not by choice… I didn’t wake up one day and decide not to have children, set a goal of dying alone in a house full of cats. I am aware there is a timeline on motherhood and that I’m a good portion into it… Childless.

The word keeps coming into my head. Childless. (deep breath)

I think that men have it easier than women. The person weilding this word pointed out most of the people in the group are childless. I don’t think that’s true. In fact, a good many of the men in the group have children they or someone else care for. A man may complain about paying child support but isn’t caring for the kids. It is harder for a woman to walk away. Like a lion pride, men can fuck and walk away. The women do the work. Most times. If we can’t or choose not to, there are other options. Options of course we will be hated forever for. But yes, it’s the fault of the childless that I don’t hate sex offenders.

I have dealt well with being attacked on many sides in the current situation. For this one I have no defense.

(quiet…)

© Michelle Routhieaux 2013

27

SAMSUNG5-3-13     10:12am

27. Mom thinks it’s the magic number, the number when everything clicked. Really, it’s just a number. Although I hear ____ say, “27. Now that was a good year.”

I turned 27 March of this year. It was not a remarkable day – appointment, lunch with Mom, major crash, terrible pain, OCD group. But my mom says something around then changed. She attributes all my recent growth to a number. Figures. She’s been in Texas. Today I feel great. A little dizzy, awake. Change is hard work.

A month or so before my birthday I spent 3 weeks in the hospital (see “Even Dark Clouds Pass.”) When I got out I was still going through it. The time since then has been fireworks. For the first time in years I started an antidepressant. I added structure & a complex schedule. I updated my day list and started using it. It is a list of things I do every day in the morning and evening that I keep in a page protector and check off with a dry erase marker. And I started BrainPaint, which I believe to be the key to my success.

BrainPaint. A simple notion. Painting with your brain. Ha ha! Not so fast, my friend. I paint with my brain indeed. BrainPaint is automated neurofeedback. EEG leads tell the computer what my brain is doing and the computer makes real-time fractals (pictures) and music to guide my brain into the wave pattern it wants. Forget training a dragon. Train your brain!

I’m doing BrainPaint at Healthy Within under Dr. Divya Kakaiya. She determined what areas we could work on. I’m almost through my treatment. I don’t want to stop. I go 3 times a week. I consider it an outpatient program even though it’s not. It’s not all peaches & cream, but BrainPaint saved my life.

I feel tired of writing.

I have 3 pages of what’s changed since BrainPaint that I may choose to share here later. Most notably, I don’t want to die every day anymore. I’m sleeping, brushing my teeth (yay!), and can tolerate being at home. Kinda crazy. I even got my permit. I am blessed that my mom was in Texas for the past month. Without limits or rules or judgement or simply the energy of another person I’ve been able to settle into life, to blossom. I’ve been repotted.

27. I like it.

© Michelle Routhieaux 2013

God Bless the Queen

“I have a message for you. You deserve the best.
Don’t settle for anything less.”
– Pastor

purple flower

Something weird happened to me in church today. I usually greet Pastor after the service but I was talking with someone so I hugged him when he walked by. I said, “It’s nice to see you.” He placed his hand firmly on my shoulder, looked me square in the eye and said, “I have a message for you.” I said, “Okay.” He continued, “You deserve the best. Don’t settle for anything less.” I said, “Okay…” And he turned and walked away. (???) I know God was speaking through him but I’m not sure why.

I asked Diane later why everyone was crying today and she said, “Because Pastor has liver cancer.” I said, “I know. But he had cancer last week too.” And he’ll have it next week as well. She said folks are realizing the mortality of the pastor, a mortality I’m well aware involves family for them. I feel no emotional attachment to the issue. I guess it could be considered rude. I feel it is a calling.

I joined the choir of this church in February, maybe March. God told me to and I listened. I wasn’t sure why. I’m not particularly fond of the music, though it’s beautiful, and the closeness of the people frightens me. But I know I am supposed to be there and I like it. I am learning to love hymns and to socialize with people. There’s something I haven’t told them. I don’t understand it fully but I know why I’m here.

The pastor is going to die. Maybe 10 years from now, maybe tomorrow. But he is. I felt it my first day there and it hasn’t gone away. By nature in new situations I look for a system, a pattern of operation. I want to know how things work and where I fit in. I need to know the rules, the standard operations, where they keep the toilet paper and which row I’m supposed to sit in. I look for areas of need and devise systems to improve them. Here my ideas aren’t warmly welcomed. I realize I’m on someone else’s turf and I need to back down. But I’m here for a reason.

When Diane got in her car accident there were angels with her. And they were in the church when she returned, and they were with the pastor. A heavy presence centers the ground, prepares it for his message. He glows gold. He knows he is dying. I know that we all are. I feel a purpose for me in this transition but I’m not sure that it’s welcome. When I look around, I see areas of change, things that can be improved. I have ideas. They are not ready yet. I am careful not to mention my ideas much. They are seen as an intrusion on established customs. They do it their way. If this were DBSA, I’d be -. I hate -. -‘s always wantin’ to change things. I like them my way. But sometimes her way is better. In this case, it doesn’t matter whose way things get done as long as they get done.

My mom says I’m cold for caring more about the logistics than the emotions of the people. Yes. I guess I’m cold. It doesn’t mean I don’t care. I care deeply for these people. Deeply enough to fight for growth and change, to pick up where some upset person left off, to continue the business of a church when its people are in mourning. The pastor is going to die. I don’t feel sad about that. I feel a little joy. This man who is so close to God will get to meet Him. And what a lovely meeting it will be. My soul smiles when I think of it.

I know I don’t have the normal social reactions most people do. I think God blessed me with my coldness for a reason. I just want to help. I don’t process things the way others do. It is a blessing and a curse. One of my providers thinks I have Asperger’s (high functioning autism). At first I was totally against the idea. Change. Fucking change. But the more I look into it, I agree. I need to talk it over with my other providers. In this situation it allows me to be functional with a lack of emotion, but I can’t understand what’s going on because it’s not happening to me. I don’t think like that. I plan. I live by systems and order. I expect tragedy. I live.

All this to say, God spoke to me through the pastor today and I’m not sure what it means. But I’m pretty sure it’s important. God bless the queen.

© Michelle Routhieaux 2013

Benefits of Pain

4/10/13     9:35am

  • Forces me to slow down, to be mindful of each thing I do
  • Refocuses my attention on God
  • Shows me what is and isn’t important
  • Humbles me
  • Makes me greatly appreciate the little things when they come back
  • Gives me permission to take care of ME
  • Allows me a space to heal
  • Reminds me this is His plan, not mine
  • Increases my empathy towards others
  • Purifies me
  • Reminds me of all my blessings
  • Shows me how frail I really am
  • Causes me to seek help
  • Causes me to want to apologize & forgive
  • Breaks down my walls/barriers/facade
  • Lets me cry
  • Takes my focus off of thoughts & feelings
  • Gives me new perspectives

I am thankful for pain.

© Michelle Routhieaux 2013

Even dark clouds pass

3/8/13     7:31 amP1170855

I just woke up to pouring rain. It’s my birthday. I take this as a sign God is washing away my pain. From the comfort of my bed I see blue sky under the dark dark clouds and it’s taking over the sky. It never left. It was just temporarily covered.

I am warm, comfy in bed propped up against three pillows in a soft shirt my friend gave me and my Cookie Monster pants. Bright orange and pink socks on matching palm tree sheets. God is good.

I got out of the hospital on the 15th. Nineteen days. The most painful experience of my life, to my conjecture. And probably the best. 19 days. I don’t want to forget those days.

I went in for a severe mixed episode, rapid cycling from suicidal & lethargic to euphoric or agitated energy about every 20 minutes. I had two doctors because Dr. N was on vacation the first week. Dr. H was great. She put me on a new med that calmed the cycling but it caused such bad muscle problems that I could barely walk. I had dystonia in my legs, stomach & back. But my mood was great. At first. Until the pain wore on me and I couldn’t take it anymore.

When my doctor came back (sunshine) we stopped all my meds in 2 days to start over, find a baseline. We’d reached a deadlock. Ah, the pain. We expected either my body would get better and my mind would get better or my body would get better and my mind would freak out and we’d fix it.

Instead, my mind did much better than expected and my body flipped out. (remembering) Pain. Attacks of being stabbed in the neck with burning knitting needles that would break like thunder into muscle spasms all over my body. Out of control blood pressure. Random spikes in bp and pulse. The muscle spasms at night hurt so bad I couldn’t move or talk. They became constant. My face twitched so bad I couldn’t see straight, made me dizzy. My fingers were constantly tingling & freezing. My feet tingled. The roof of my mouth tingled. I wasn’t sleeping or eating. I became frail, which was pleasing to me but angered my doctor. I hid under the table from the voice in my head, heard an unfamiliar one for the first in a long time. My hands would stop working & turn cold and purple. My doctor didn’t know what to do.

God sent me angels. I could see and feel them with me. He spoke to me. He came as a hummingbird. All around me was God and I was never alone. I cried out to Him to take me home. I was so scared but He was not. He told me, through the words of my mouth and a cloud, “Don’t take your eyes off me. It is written,” quite firmly. I knew the storm was coming. I didn’t see the glory. Before each spike in pain I would hear God’s song. He gave me music. Calming songs would start before and play through and my angels were with me. I was never alone. Heart racing, shaking, body writhing, unable to breathe. They would ask if I was nervous, having a panic attack. No. I felt calm.

Many days of this wore on me. With no psych meds my mood was all over. I wanted to die. We started adding back in meds, building a new ground. The staff were amazing & my fellow patients priceless. Friends. Something finally clicked and I was ready to come home.

Which brings us to now – 3 weeks later. It is my birthday and I feel good. I can’t remember the last birthday I felt good or even semi-ok. Last year I screamed and cried and refused to get out of the car and slept most of the day, reclused. Today I feel good. It’s morning and I am awake. The birds are chirping. My kitty is watching. The clouds part and I feel JOY. Praise God!

This whole experience has drawn me closer to Him. I’m listening. I’m paying attention. I joined a church choir and am reading “The Story.” I don’t feel as scared. I’m taking care of my body, trying to lose some weight. I even want to decorate my room. Goals seem possible.

A different life seems possible too. I don’t feel trapped. I get to choose what to do and what not to. I can move in any direction. That said, I am still exhausted. Trying on shoes last night knocked me out. I am exhausted but not weary. I see the light. Praise God.

May 27 be the best year yet.
My goal is to LIVE.
My theme: Break the Rules.

Even dark clouds pass.

© Michelle Routhieaux 2013

My Brain is a Beach Ball

(writing from the hospital)
2-3-13     9:20am

I was just sitting in morning meeting thinking. A 2″x 2″ metal square is depressing the front of my brain. It has a nice matte dark finish. It’s pressing on my brain. Impairing, altering my ability to think. Throwing off track the course of my eyes. Making me want to die.

I began to desire the removal of this pressing weight, but my brain might float away as it’s done in the past. Filled with the glory of the Spirit and the creativity of a child. To twirl and leap in the sunshine, to build empires in the night. To despair and fall into self-destruction from harnessing such energy.

(distraction)

I certainly don’t want that, though it’s fun for a night. Like a beach ball flying up in the air when you fall off to the side.

I started thinking of the beach ball, of its resting state. It doesn’t require compression, being held under water, and it doesn’t float away – if cared for properly. I suppose proper genetics and nurturing allow a beach ball to progress without incident. But if it’s stabbed or over or under-inflated or dried out or forgotten, you never know. Under tremendous pressure it will pop. It may also take on water very slowly, become ever so much heavier until one day it is deemed unusable and its human walks away.
My brain is a beach ball.

My brain is beautiful. Beautiful in its complexities and creativities and jerks. In its random fuck yous and kindnesses and deep appreciations. In its expression of itself and God to others. I sometimes want to hide it. I feel ashamed. I hold it under water and I pray for it to die. I hide it in the shed. I drag it through the rocks. I leave it in the sun. The damn thing is indestructible. I don’t know why it loves me. I don’t know why it sticks around.

For some reason my brain has yet to kill me or allow myself to do it. It hasn’t banned me from knowing how or walking through it many times. It just says, “Not now.” God says, “Not now.” I trust Him. He sent Dr. Harvey to sit with me last night. My brain has never left me. I have altered it, drugged it into submission, injured it, begged & pleaded. It has a passion for life. For learning and love. It holds tight all the things I’ve let go of for me, all the things I’ve forgotten. It tucks away what I can’t tolerate. My brain is amazing. I love my brain.

I really hope they can help me here to make a safe zoo for my beach ball brain so the world will be fun and I can think but I’ll be okay. I so want to be okay. Please help me be okay. Someone is standing on my brain.

My brain is a beach ball.

© Michelle Routhieaux 2013

I am so blessed

1-13-13     6:55pm

I am so blessed. I taught dance for the first time today in about ten years. It felt SO good. It was ME. By chance I met a little girl who wanted to dance and her mom said it’s okay. She’s about 7. I didn’t ask. I bought her some tap shoes and brought my pink duct tape. She wanted to tape her headband to her hair. Lol. Her favorite color is pink like mine and I had a blast. We jumped up and down and walked like ducks and cartwheeled and ran around and still made progress. She is so sweet. I feel like me.

I didn’t want to go today. I was so down and discouraged. And I was afraid I would get in trouble for teaching in the back of an existing class. I organized papers and sat on my bed and stared. Literally all day. I was so cold that my fingers and toes were numb. Just be. But I put myself together to go and I’m so glad I did. I had a blast and the teacher wasn’t angry but surprised and delighted to have the option of having kids learn there too. I’ve never been much one to teach kids but I can adapt.

I have my own odd way of teaching. More quirky than odd. I use shapes and movement and chairs and build things up backwards. And it works. If you stick with it. I’m grateful to have the opportunity to find myself through teaching this little girl, even if only for today. I love dancing. And dancing loves me. (sigh) I am so blessed.

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© Michelle Routhieaux 2013

Me

(Note – Yes, I am safe.)
1-6-13     6:30pm

Just got home from RENT. I went with Taylor. Cried through most of it. Exhausted now.

I miss Brandon. I miss my theater family. I miss being me. All of the goodness that I am now isn’t ME.  I miss Sarah and Mr. B, knowing I had a role, a purpose. All of that was taken from me.

It’s something we never talk about in therapy. We talk about sense of self. We don’t talk about me. Is it too late to get her back? Is she gone forever? Is the opportunity gone for me to be me? I so desperately need me.

Please.

healing card - therapyI pulled a healing card today that says this, “It’s important not to get stuck in therapy. Therapy is a necessary boat that takes you across a rough river to a new shore. In time, though, you must step out of the boat and onto new earth and never look back.” There is a passage with it about not carrying the raft forever and being wary of letting supports be a substitute for life.

I don’t understand. Illness took me. Therapy took my life. Therapy forced illness to cough part of me up and became my life. I can’t get the real me back. If I let go of groups and therapy I have nothing.

I wish someone had warned me, told me, “Don’t let go! Not for anything.” But they didn’t. They were living. Now I am scared to breathe.

A little girl wants me to teach her to dance. I’m terrified. Please don’t touch me. You don’t understand.

Who am I?

I am a little girl.
I am a friend.
I am a dancer.
I am an artist.
I am a patient.
I am a child of God.
I am me.
I am not what I feel.

(“I’ll Cover You”)

I want to scream out, “PLEASE HELP ME! Someone’s taken my soul!” But no one’s there to listen, only hear.

If I can’t be who I was, I don’t want to live at all.

You couldn’t tolerate the stress of who you were.

I can’t tolerate the stress of now.

Touche.
Take your AZT.

I think if I got into a show it would bring me back. I would find me again. I NEED me.

Me is dead. She is gone.

No she’s not! I saw her last week.

Elvis has left the building.

My head hurts.
I want to die.

I know.
Do you honestly think in your state of mind you could do it?

I’ve done it before.

But not with the physical ailments.

True.
What am I supposed to do?
I can’t do this anymore.

Sing, take drugs & teach.
Work your way up.
Peanuts to packing peanuts.

Fuck that.
When do we start?

I want to die.

I know.
I’m tired.

Triggers

Theater
RENT memories
B- memories
USC memories
shame about my life
missing Sarah
believing I can never have me back

Vulnerability Factors

Janet’s death
pre-existing severe depression
exhaustion
allergies/infection
headaches
holidays

Thankful Taylor is texting me. Need to take – and -.
Make a plan, Michelle. You can do this.

© Michelle Routhieaux 2013

Feelings

1-4-13     7:27pm

In the silence music comes to me.

Now “I Need a Miracle.”
Before “Walk on the Water.”

Waves of intense anxiety followed by crashes. Labor of feelings.

(breathing)

I colored. I am a unicorn. My head hurts.

I’m glad Mom doesn’t have the tv on.

People keep asking if I’m okay. I don’t know what to tell them. I want their support. But I don’t want to want it. I don’t want anyone to know I need help.

15       LEAVE ME ALONE.

There was so much love and support at the group last night. I couldn’t take it in. I felt squirmy.

15        Leave me alone. Stop talking to me. Hide under my desk.

I’m not supposed to feel. Don’t you understand? Feelings are for secrets, closed
doors and letters. I don’t feel. I dance.

Feelings get me in trouble. I am not allowed to have them. I am pro other people openly having feelings, sometimes. I, however, tuck them away safely in a vault that eats at me. I can’t even get to them if I want to.

Feelings are scary and dangerous. They make me feel ashamed. It is my job to be strong. It is my job to be a robot. Do the work, listen, comfort, be.

I am angry that other people can have feelings but not me. I feel them in a tiny ball, an orb in the center of my brain, best friends with the hippocampus. They hover there and tell me what to do. I speak this out loud as I write it purely monotone, a few syllables at a time. I stare. My head hurts. Please help me.

*Smack* Don’t you EVER say that again.

I see other people cry and they’re comforted. I’m not easily soothed. I get angry. I don’t want people touching me. I don’t want them to know. I want to be fucked up in private and then go back to my life. I don’t accept help. I feel lonely. I push people away. But not out of unlove, out of self-stigma.

15
Leave me alone.

I don’t trust them.
People who say they will help lie.
They just hurt you.
It’s a trap.
Stay in the dungeon where it’s safe.

FG                 
She doesn’t understand.
She has good cause not to trust.
She is learning.

13                               
She is killing us.

FG                
Maybe so.

I want to cut or hurt myself to feel. I could cry a few days ago. Now I just stare. Tears in my forehead. Crashing. Must sleep.

© Michelle Routhieaux 2013

Breathing

the girls 201012-29-12     10:31pm

It hurts to breathe…

The air in me is hollow.

My brain laments with grief.

My head hurts. I just got home from Denny’s – a gathering of distraught friends. I took tissues & Play-Doh and ate plastic cheesecake. I am not okay.

I am not okay.

I feel God holding me, thankfully. Mom’s on the phone with Don. I don’t care. I am stoic with small bouts of tears. I need to talk to someone who’s not in it. I need to let go.

I hear “I Need You Now” by Plumb.

Armando said I look very calm. I’m about to implode. All my cells are on high alert. My head hurts. I don’t move much. I’m not hungry. I stare. I can’t tolerate noise or stress. I just want to be.

I was the last person who saw Janet. I shared her last meal. I had that privilege. And I am in pain. And all the questions are coming up. The what did she say and why didn’t you see the signs and did you knows. I didn’t do anything wrong.

I can still feel her hug.

How many times have you heard me cry out?
How many times have You given me strength?

I made arrangements. Let everyone know. Am answering texts night and day. Planning a memorial. Secured a minister. Set up a therapy group. Sat with Chrissy. Breathed.

It hurts to breathe.
It hurts to be.

I took a shower today.
This is how I deal with crisis.
I shut down. It is absorbed into my body, the fabric of my being and it doesn’t exist. I cry alone. I sing. I breathe.

Janet is dead.
It hurts to breathe.

© Michelle Routhieaux 2012

Janet was my friend

12/29/12     5pm

Dear Jesus,

I don’t know if she believed or not, but I like to believe that Janet is in your arms today. Please bring her all the comfort and peace that she couldn’t find here and introduce her to joy. Thank you for the time you gave me with her. She is an amazing friend. Please be with Chrissy as she deals with this trauma and help me to provide comfort and support to the group. Give me strength to hold everyone up, to maintain my link. Thank you for giving me the resources and fortitude to do this. Thank you for hope.

In your name I pray, Amen.

Janet 2010

Janet hung herself.
I’m going to the donut shop now.
To be with Joe & Chrissy.
(pause)
Janet was my friend.

Chrissy found her.
Janet was my friend.
I saw her on Wednesday. We worked, talked, had dinner.
I knew she was bad.
I didn’t know how close.

Was the cleaning up all part of the plan?
I doubt it.

She hung herself in the bathroom.
The bathroom we just worked on.
With the flowered rug.
And the Tinkerbell towels.

Janet was my friend.

We went to Noodles & Company after.
She bought me food. We talked.
She laughed.

I met Janet in 2004 in Henry’s group when she was living with her family in Borrego and getting ECT. She was a wreck, but she helped me. She would walk me through guided imagery. We talked on the phone hours a day. She jumped out of a car on the freeway, ran away. Her parents screamed at me. So much drama. But she was my friend.

I couldn’t tolerate her anymore and was glad she disappeared. I hadn’t seen her in years when she showed up at DBSA. I heard of a Janet and prayed it wasn’t her, but it was. I was scared it would be the same drama with her parents and Fidaleo and 17 drugs. But it wasn’t. She was different.

The crippling depression Janet experienced while at DBSA was a vast improvement from when I met her. She had skills, sometimes hope, and a desire for a good life. She lived on her own or with a roommate, drove a car, fed her cats. Those cats were her family, her reasons for living. And the whole month of Halloween.

Janet was a broken little girl living the devil’s fairy tale. With a body that wouldn’t die. But I guess enough is enough sometimes. Her body & mind were weary. It was time to let go.

I can’t imagine her believing it would work. One last try out of desperation. Care for the cats and care for myself. I don’t blame her. She endured years of torture, loneliness and pain. The people she wanted love from the most were mean to her. She had nothing left in the reserve. No doctor, dwindling meds, persistent severe depression. She had her note cards and her kitties and her best friend. She fought the good fight and now it’s over.

Janet was my friend.

I find myself grappling now with the what if and why questions. The words that have no answers. The words that need no response.

I’m going to the donut shop.
Janet was my friend.

© Michelle Routhieaux 2012

Jesus Loves Me

12/4/12     8:15pm

Dear God,

THANK YOU!

I am waiting for the trolley. I feel joy. I breathe in the cool night air. I breathe. I breathe… I feel calm. I listen intently to crickets and the sound of car tires over rail tracks and the wind. German discussions drift…

My hair blows softly over my face.
I’m free.

I’M FREE! (sigh)

I can’t explain the joy sitting here brings me. Folding laundry. Listening instead of just hearing. The deep appreciation of rising from the ashes, of being released from pain. I see colors. I taste. I feel God again.

19 days of pain have led to this beauty. I am set free. I savor the feeling. I know it is just for a time but this time is mine.

(break to talk with Ringo on the trolley)

(zap) I look forward to projects. I eat colors, swallow time. I am pink and the whole world sings. Of joy, of deliverance, of me. My face smiles without me. I watch. She is beautiful when she’s happy.

This week I realistically contemplated going in. Today I don’t need to. When I see my doctor tomorrow the pain will be a story. I will be able to talk, unlike last time, and to think. I think. Anyway, there is such a difference. Like flipping a switch. I am glad to be on this side.

I could not appreciate gift without loss. Now I take it in, prepare and wait. Rest. Thank you, God. Weepin’ may endure for a night but joy comes in the morning. Amen.

My whole body tingles.
Joy comes in the morning.

(sing Brett Michaels’ song “Joy Comin’.”)

As my muscles being to hurt again, remember this feeling.

I used all my energy today.
Now I’m melting.
At least I can poop.

7          If I can feel such joy on Earth, can you imagine what it’s like in heaven?

FG       I don’t know.
            Probly pretty awesome.

3          Sparkles and unicorns!

13        Dragons & fire.

25        Peace & quiet.

7          And angels.

13        I want to paint the sky with a dance and pour out the rain.

FG       And for things to be okay.

3          Jesus will like my unicorn.

7          And I want to ride a sunset.

3          Jesus loves me.

FG       I know, baby. He does.
            Jesus loves me.

© Michelle Routhieaux 2012

Resolution

12/4/12     12:50am

Today was a little better. I didn’t sleep much last night. Woke up a bunch of times semi-clear and paranoid. I was really agitated so I took half a Xanax. I went to the dentist to talk with the billing lady and couldn’t think at all. Then I slept the entire day. But before sleeping I went to the mall to return something and actually shopped a little. It was a good sign to me.

I slept all day with my kitty next to me and went to group tonight. And J showed up at the end to see me. I was caught off guard but we had a good chat. A heart to heart and I was able to be assertive and not aggressive and listen actively. I’m proud of myself. We are now on, I guess, somewhat good terms. We are not a was but I’m not sure what we will be. For now we are slightly more than friends, which is okay with me. I got to share in group too. It was good.

My muscles are only moderately painful today and didn’t start bothering me a lot until this evening. Granted I did sleep all day, it’s still good. I’m hoping I’m on the tail end of this round. My head barely hurts today. Fingers crossed. It’s been a long 19 days.

My kitty’s sitting on the table giving me the “PLEASE take me to bed” stare so I have to go. I’m so grateful for today. When I have trouble walking I can still dance. When I have trouble talking I can still sing. And tonight I can pet my kitty.

Love you, Michelle

© Michelle Routhieaux 2012

Joy

P1160413-4

12/3/12     1:56am

In writing tonight about sadness and pain I am reminded of joy. I felt such joy singing today. I sang with my choir at a nursing home and for a few moments all of it was gone. God sang through me and I was filled with hope. My director said he’s going to call me Merry now because I’m so joyful. It’s true. Singing brings me such joy, especially gospel. I need to remember and do it more often.

© Michelle Routhieaux 2012P1160408-3

Life Update

12/2/12     9:54pm

I’m having a really hard time.
My muscles are fighting me.
Round after round of sustained contractions in my back, stomach, left arm.
Almost constant moderate to severe head pain. Small windows of reprieve. Weakness that makes it difficult to breathe, move.
My brain feels heavy, paralyzed.
It’s hard to think.

My mood is up and down. Sometimes euphoric or elated. Others suicidally depressed. Small periods of effective work. Minutes. Trouble standing. Pain sleeping. I wake up thrashing, throwing my head back and forth. My left hip keeps popping out. My wrist is improving slightly from the fall.

I can’t hear my stream of thoughts.
I can’t feel my feelings.
I don’t want to shop.

It’s 10pm & I’ve been ready to sleep for hours.
Hours…
Hours.

I need to sleep.

Some days I wonder how long this can go on. The voice in my head says “forever.” My history says usually about 2 weeks. When I’m in it I think it will never end. When I’m out I forget what it’s like. Right now I watch NCIS.

(stare)

I have sharp pains in my muscles too.
Happy Sunday. (weary grin)

(eat chicken rice)

My organs get in on the action.
My heart, bladder & bowels. My stomach.
My eyes.

(stare)

I started talking to a recorder on my phone. I’ve yet to transcribe. Feels good. Eventually they’ll be on the blog.

I’m really glad I write.

Mom’s boyfriend is going back to New York tomorrow. I don’t want him to go. We’re not buddy buddy but I like him. And he makes her happy. The house will be quiet without him. I feel lonely.

J’s back in town. (It feels good to write.) I haven’t seen him yet. He texts me on and off. I don’t want to see him. It was good while it was good. And it was bad when it wasn’t. It was better when he left. It will be better when it’s over. His texts and actions and inactions and lies make me angry. I’m proud of myself for keeping my boundaries and for knowing and believing at my core that the ending does not devalue the good. I just can’t do it anymore.

He’s texting now. I feel frustrated. I can hear the sales-pitch in his tone. I feel bad because I think he honestly doesn’t know or understand. I love him. I want the best for him. I want him to grow up. We can play, but I can’t be his mother. I can’t be his God. And I can’t be his taker.

I haven’t written in so long it’s like unclogging a pipe – the one from my hand to my brain. Reconnecting with an old friend. I do not control what comes out. I just watch.

My brain and body are fading. less pain. falling asleep. NCIS is like family.

My eyes feel glazed in plastic.
My feet are tingling. My tongue is curled.
My back needs to crack.

I’d like to paint my nails but my muscles are too weak. It’s better than being cramped.
I wonder what my Potassium level is.

I feel like I have to keep writing even though I have nothing to say. And I have to pee. Hmmm…

© Michelle Routhieaux 2012