Wish List

3/5/2017   3:51am

251847-happy-birthday-to-me
So, it’s not my birthday yet but it’s coming up this Wednesday and a few people have asked me what I want. I’m not too good at birthdays, as evidenced by my track record, but I made a list of things I’d like to get or do. I’m not asking you to get me a gift or implying that you should. I just want to put the information out there for anyone who feels the need to. Thank you in advance. Here’s to a great Wednesday. :)

 

Amazon Wishlist: Michelle’s 31st Birthday
(collection of things online I’d like)

Free Options/Add-ons:

  • Choose DBSA San Diego on  AmazonSmile so my group makes a profit off of your Amazon sales. Just start your shopping at smile.amazon.com
  • Join Ebates using my referral link and then buy something. We’ll both get a bonus.

Gift Cards or Credit to:

  • CASH is always welcome ;)
  • Funds to see one of my cash-pay providers – Soleil, David, Dr. H, etc. – or towards my Phoenix Rising Training fund (please specify; my paypal email is whatnomuffins@gmail.com)
  • Amazon.com
  • Pampered Hands (Costa Verde Shopping Center)
  • Rigby & Peller (Fashion Valley)
  • Vision Direct
  • USA or Arco Gas Cards
  • Target
  • Chipotle
  • Jamba Juice
  • Rubio’s
  • Pieology
  • Sizzler
  • New York & Company
  • Kohls
  • JC Penney
  • Regal Movies or Edwards Cinema

Tickets:

  • Rock & Woship Roadshow March 10th – Ontario, CA. I’d love it if some friends could come along.
  • Chris Tomlin’s Worship Night in America – May 9th SDSU. I know some people agreed to go but I haven’t had the money to buy tickets yet.
  • Kinky Boots

Activities:

  • I’d like to try a Barre class
  • Santee Drive-in
  • Bowling at Parkway Bowl
  • Ice skating
  • Trampoline Park
  • Rock Climbing
  • Sea World (I get someone in with me free)
  • Butterfly exhibit at the Zoo
  • Art Night at my house or Quiet Party
  • Let’s go to laughter yoga in Balboa Park
  • Horse riding on the beach
  • An afternoon at Coronado dog beach
  • A night at the Shout House
  • Come to Zumba with me
  • Come to church with me

Well, I hope that helps. Helps me to know what I want!

© Michelle Routhieaux 2017

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Rebranding

3/1/15     12:32am

Hello, dears. ;) It’s like greeting an old friend, sitting down to type. It has been awhile. Someone asked me recently, “What happened?!” in regards to my hospitalization. Well, a lot. I haven’t been able to answer that question yet. I thought I’d try here but it doesn’t seem likely tonight. I’m tired. I feel disconnected.

I worked all day in somewhat of a trance on my room and my chair in the living room – organizing papers, moving things around, throwing things out. I took a 4 hour nap in between but was able to create a space for me. I took some pictures but they came out blurry. I made space to put down my dance floor, a rug and my purple BackJack. I assembled some metal cubes to store stuff I don’t know what to do with in. Everything is up off the floor now. I even changed out the art on my walls. My room reflects me now. Colorful, calm, full of possibility and flexible in use.

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My birthday’s coming up next week. I’m excited. I’m going to my aunt’s house in the desert – my favorite place in the world to be. I get to spend time with my family and my dog and alone time with the dirt – my salty desert dirt. Is it just me or are there a lot of the words me, my and commas here? My mind is on its own today.

I’ve decided this year the purchase I want to save up for is a fountain. Yes, I want my own fountain. I got a mattress I love and last year I bought myself a swing. A fountain seems a fitting next step. I feel calmer near water and always gravitate towards it in gardens and at the hospital. So I’m starting a fountain fund. If you want to pitch in toward the fountain for my birthday, just because you like me, or because you have nothing better to do, you can send money through PayPal to my mom (diana.routhieaux@gmail.com). I made an Amazon wish list too. I want to buy a bowling ball this year but I’m not sure when. I’m overspending recently…

I feel like a seven year-old after a long day at the fair, coming down off cotton candy and ice cream, talking in circles and not making much sense. (stare) Then again it is 1:30 am and I took my meds at midnight. Eh, same effect. I’ll leave you to it. (Zap!)

© Michelle Routhieaux 2015

Even dark clouds pass

3/8/13     7:31 amP1170855

I just woke up to pouring rain. It’s my birthday. I take this as a sign God is washing away my pain. From the comfort of my bed I see blue sky under the dark dark clouds and it’s taking over the sky. It never left. It was just temporarily covered.

I am warm, comfy in bed propped up against three pillows in a soft shirt my friend gave me and my Cookie Monster pants. Bright orange and pink socks on matching palm tree sheets. God is good.

I got out of the hospital on the 15th. Nineteen days. The most painful experience of my life, to my conjecture. And probably the best. 19 days. I don’t want to forget those days.

I went in for a severe mixed episode, rapid cycling from suicidal & lethargic to euphoric or agitated energy about every 20 minutes. I had two doctors because Dr. N was on vacation the first week. Dr. H was great. She put me on a new med that calmed the cycling but it caused such bad muscle problems that I could barely walk. I had dystonia in my legs, stomach & back. But my mood was great. At first. Until the pain wore on me and I couldn’t take it anymore.

When my doctor came back (sunshine) we stopped all my meds in 2 days to start over, find a baseline. We’d reached a deadlock. Ah, the pain. We expected either my body would get better and my mind would get better or my body would get better and my mind would freak out and we’d fix it.

Instead, my mind did much better than expected and my body flipped out. (remembering) Pain. Attacks of being stabbed in the neck with burning knitting needles that would break like thunder into muscle spasms all over my body. Out of control blood pressure. Random spikes in bp and pulse. The muscle spasms at night hurt so bad I couldn’t move or talk. They became constant. My face twitched so bad I couldn’t see straight, made me dizzy. My fingers were constantly tingling & freezing. My feet tingled. The roof of my mouth tingled. I wasn’t sleeping or eating. I became frail, which was pleasing to me but angered my doctor. I hid under the table from the voice in my head, heard an unfamiliar one for the first in a long time. My hands would stop working & turn cold and purple. My doctor didn’t know what to do.

God sent me angels. I could see and feel them with me. He spoke to me. He came as a hummingbird. All around me was God and I was never alone. I cried out to Him to take me home. I was so scared but He was not. He told me, through the words of my mouth and a cloud, “Don’t take your eyes off me. It is written,” quite firmly. I knew the storm was coming. I didn’t see the glory. Before each spike in pain I would hear God’s song. He gave me music. Calming songs would start before and play through and my angels were with me. I was never alone. Heart racing, shaking, body writhing, unable to breathe. They would ask if I was nervous, having a panic attack. No. I felt calm.

Many days of this wore on me. With no psych meds my mood was all over. I wanted to die. We started adding back in meds, building a new ground. The staff were amazing & my fellow patients priceless. Friends. Something finally clicked and I was ready to come home.

Which brings us to now – 3 weeks later. It is my birthday and I feel good. I can’t remember the last birthday I felt good or even semi-ok. Last year I screamed and cried and refused to get out of the car and slept most of the day, reclused. Today I feel good. It’s morning and I am awake. The birds are chirping. My kitty is watching. The clouds part and I feel JOY. Praise God!

This whole experience has drawn me closer to Him. I’m listening. I’m paying attention. I joined a church choir and am reading “The Story.” I don’t feel as scared. I’m taking care of my body, trying to lose some weight. I even want to decorate my room. Goals seem possible.

A different life seems possible too. I don’t feel trapped. I get to choose what to do and what not to. I can move in any direction. That said, I am still exhausted. Trying on shoes last night knocked me out. I am exhausted but not weary. I see the light. Praise God.

May 27 be the best year yet.
My goal is to LIVE.
My theme: Break the Rules.

Even dark clouds pass.

© Michelle Routhieaux 2013

I can’t remember, a test & permission

8-22-10                1:35am

I can’t remember what I did for my birthday this year. I remember the night before at Bing Crosby’s and the black dress. I remember at Ralphs not letting them buy me cupcakes (I don’t like Ralphs’ cupcakes.) I remember opening the four cards Mom got me and the bouquet of flowers, but I have no idea what I did that day. Maybe I was sick. I know there was a plan and that it didn’t get followed… (flash) Dinner at Rubio’s. Yes. That wasn’t the plan though. I don’t even remember if I had a party sometime that week. This concerns me as I think it’s something I SHOULD remember. Don’t you?

(break to watch the rest of “Blue Collar Comedy Tour Rides Again”)

I got out my ring last night that I bought when I tested negative for HD. I was thinking about it because last week Sacha mentioned wanting to buy herself an engagement ring and the ring I have is just that. I’d forgotten how beautiful it is. Sadly, after a few hours it hurt my finger so bad that I took it off. Apparently my fingers are fatter now. But I wondered what my reward to myself will be when I get the results of this upcoming test.

I’ve been waiting on a diagnosis for years now. And the list I was expecting from a friend is not coming so I called my neurologist Friday night on a break and told him which test I want him to order. There is one dx I’m looking at in particular. It’s called DRPLA. Good luck Googling it and finding anything useful. This is the best thing I found http://www.ataxia.org.uk/data/files/drpla.pdf. It seems to fit and I’m hoping it’s what I have – not because I want it but because I want an answer. I want a name, some validation. You know? I want to be able to say, “See, I’m not crazy. I DO have an illness and it has a name.” I’d have an answer for, “Why are you twitching?” I’d have some proof that’s it’s not, in fact, a conversion disorder but it is in my head. In my BRAIN, not my thoughts. In my fantasy today I would get this wonderful/awful news and have a Celebrate Life party. The news itself would be a relief. This part of the search would be over. However, if it’s not what I have, it would be devastating… I want to have that party. I want to know what’s going on.

I talked about it with my therapist this week. It’s great having a neurology professor as a therapist. I asked him if he had any tips on dealing with cognitive impairments and he said if it is cell death in that region of the brain the best thing I can do is dance. God is good, isn’t he? (big smile) I also bought a ping pong paddle and balls. It’s all part of the story, revealed one page at a time.

I’m so exhausted. I really should sleep now. I’m going to a piano thing tomorrow and have to be on the trolley in 8 hours. Yuck. Hopefully it’s worth it. Thanks for listening.

Love,

Michelle

© Michelle Routhieaux 2010