(dictated into my phone a few days ago)
Well, it’s 2:20 in the morning. I’m lying in my bed wondering what I should do. The kitty’s asleep. I would wiggle my feet if they weren’t curled up over my body. I have a really bad headache. I’m 5 medications in now and just finally calming down enough to be able to sit here and Facebook on my phone in the dark while almost crying. It’s ridiculous. I don’t know what’s going on with me. I don’t know how to fix it or if it can be fixed. It certainly is distressing.
I went to see Life of Pi with a friend tonight. It’s a fascinating movie. The story. The scenery. The filming. Amazing. But my head hurts. It’s hurts and it won’t stop hurting. I found this great medication that worked perfectly for me but I can’t get it. So I stopped taking it. And now I take it on and off but it doesn’t work right. I had something formulated at a different pharmacy but that wasn’t right either. So, I tried two rounds of both of them tonight and then Excedrin and then Maxalt and then I took some Xanax in the hopes that I would fall asleep while my head was hurting so bad so I wouldn’t have to deal with it. I have a giant ice pack over my face. But I’m not sleeping. Xanax usually makes me sleep, and my head still hurts. I’m not really sure what to do.
I’m really out of it lately. Disoriented. Having all sorts of mood crashes. I’m pretty sure it’s related to the headaches. I had my first ever command hallucination a few days ago. I was wandering. I was walking, talking to my doctor in my head even though he wasn’t there. I mean I was talking out loud but he wasn’t there. And I hear the voice of God sometimes, which is wonderful. But sometimes I hear this voice that tells me things that aren’t God. And that day the voice told me that it was time to kill myself. And um, I was a bit disturbed by that. You know, I just kept walking and I felt sad and I just thought, “No. No, I don’t think it is. I don’t think that’s right.” I was concerned.
I’m really glad I didn’t fire my therapist because I had a good session with him yesterday. I really needed it. Someone who gets me. Someone I trust. Someone who cares.
Tonight I sit here in the dark and I imagine what my ceiling would look like if it had stars and unicorns on it from one of those Pillow Pet Dream Lites. But I don’t have one. So I just imagine. I decided a few weeks ago that I need to go through all my possessions because my possessions overwhelm me, especially when I’m feeling a lot of pain, which is a time I’m least likely to be able to deal with them. So I decided that I would pack up all my possessions as if I was moving and then unpack them, get rid of the stuff I don’t want. Seems easier that way. I started, yesterday I think, and it actually works pretty well. I got through maybe like one or two bookshelves and it feels good. It works to pull my possessions out of their original environment and at least take them to another room. I want my life to be simple, and stress-free, and as pain-free as possible.
I watched a TED Talk tonight that was a great distraction while I was waiting for the meds to kick in. The talk was about how a broken body doesn’t mean a broken person. And a broken person doesn’t mean a broken life. It was encouraging. A good distraction. I’m so glad Divya turned me on to TED Talks. They are quite engaging for the mind but they’re so good to just focus on when you can’t focus on anything else. And the fact that my phone streams them is very helpful.
I don’t know what’s happening to me. Or why. Why I have these headaches. I’ve had a headache for at least a week and a half now, which means it should be gone in maybe 4 or 5 more days, I hope. They seem to come for about two weeks at a time. I just remembered tonight that I probably could call my headache doctor and be like, “Dude, what the fuck should I do?” but when I’m having bad headaches I really, I can’t do it. It’s too much. I don’t know what to tell him. And I can’t remember to call him. And if I do call him I wouldn’t know what to say. And even if I could say something, I wouldn’t know what he said back. I would feel confused and sad. It’s hard enough dealing with him in person. I like the dude, but he’s confusing.
I feel bewildered. And disoriented. It’s kinda like, there are thoughts in my head but I feel like my brain is paralyzed. Like it’s just sorta sitting there, very heavy, not doing any work. Like it’s on lunch break. But I’m still here. Waiting. I went out to dinner with some jazz friends last night and I just couldn’t really produce any viable thought. Any useful response.
I did so much shopping recently that I’m all shopped out. Anyone who knows me knows that that’s very very unlike me. I shop. I like shopping. And I do it a lot. But I don’t wanna shop any more. I just don’t feel like it. Lately I just feel like sitting and waiting for the pain to go away. Not even sleeping ‘cuz when I sleep my body hurts and I wake up thrashing my head back and forth and I don’t know why. I don’t know why. My food doesn’t taste good. And I don’t wanna eat. I’m not really taking care of myself.
There are a lot of stressors going on in my life. And I’m proud of myself for the way I’m handling them. I’m doing really well. But at the same time I’m crashing, hard. I told my therapist this week that, you know, I wouldn’t be surprised if I was in the hospital in a month. But I wouldn’t be surprised if I wasn’t. And he asked which I would prefer. And I told him I honestly don’t care. I really just don’t care about anything right now. I can’t think. And my head hurts. My head hurts. My head hurts.
So I sit here in the dark. And I talk to my phone. And hopefully I’ll transcribe you into a blog post, but I can’t do that right now. ‘Cuz my head hurts and I was hoping to fall asleep. If the drugs don’t kick in in another half hour I’m gonna start taking any PRN I have here for any purpose I have it in the hopes that it will do something. If it doesn’t, well, God help us.
I love you. Thanks for listening. -Michelle
*I did wanna say that this week I started hearing original music again. In and out. I would like to hear more of it. Sort of interesting. I wish I was a musician, that I could make it real, make other people hear it. Record or write down, transcribe what I’m hearing. Sometimes it can be amazing. It’s not really a good thing because me hearing original music is, well, a red flag. Some of it can be so beautiful.
The last time I heard original music was several years ago. And I was hearing the most beautiful electric guitar music. It was beautiful in the beginning. And then I guess it kept being beautiful but it didn’t stop for about three weeks and it was just wretched. It sorta wore on me. But if I played the electric guitar it would’ve been wonderful wonderful music. This time it’s more like a soundtrack and it comes in and out. I do wish it would come more in than out. I like hearing the music of God.
© Michelle Routhieaux 2012