“I don’t know” is not an acceptable answer from a doctor. It might be if it was followed by a referral to someone who DOES know, but it’s not. I am going insane. My neurologist refuses to call me back. I just spoke to my psychiatrist on the phone. He said he has no idea what’s going on with me or how to help. He said it looks like a little bit of everything and he doesn’t know what to do with it. He also said that every doctor who sees it is equally as confused and therefore ignores me or refuses to return my calls. This is unacceptable!
I am so fucking tired of “I don’t know.” He told me today his observation is that I do well when I’m moderately busy and terrible if I’m overscheduled or bored. Yes, that’s true. But he also said that he thinks since I have little to do now that I should do more and distract myself, that having extra time is making me hyper-aware of my physical symptoms. (pause) Really? Cuz when you’re head hurts so bad you can’t stop crying or throwing up or half of your body is tied up in twitches and zaps or you can’t think straight, I’m pretty sure YOU are going to notice it whether you’re busy or not.
The hospital is the place I go when I don’t feel safe. Times when feelings like now don’t pass. But this is the guy who treats me at the hospital. And every damn person’s answer is “I don’t know.” How am I supposed to accept this? The song on the radio keeps repeating, “I’m fallin’ to pieces.” Yes. What do you do once you’re IN pieces already?
“I don’t know” or silence are not acceptable answers. This is a crisis. This is NOT a drill. I guess I’m the only one who hears the alarm.
© Michelle Routhieaux 2010